Links

  • VAGAVereniging voor Aangeboren Gelaatsafwijkingen (Association for Congenital Facial Abnormalities)
  • Het kind met schisis" (The child with cleft lip and palate), a site by Stichting Schisiscentrum Rotterdam (in dutch)
  • Overview site with a lot of links offering information, literature, experiences, feeding etc. in relation to cleft lip and palate (Some of these sites have pages in English.)
  • The Smile Train: site run by an international organisation that has been trying to help children with cleft lip and palate throughout the world since 1999
  • Orthodontie Online: a collaboration between ACTA (Orthodontics Department) and VNU Medical Media
  • Erfelijkheid [Genetics]: site by an independent non-profit organisation providing public information in Dutch on genetics and health
  • American website with a lot of information and links to sites on cleft lip and palate
  • Site of the Dutch association for cleft lip and palate and craniofacial abnormalities (in dutch)
  • Ronald McDonald children's fund: give a smile: this project aims to help families with children born with a cleft lip, alveolus or palate with financial support and also to increase public awareness of this very common problem.

Patient experiences